The blood doc called to say that we needed to make an appointment for follow up draws because remember we had gotten the PICC line out. Well, I made that appointment and thought I would check up on insurance to see if our deductible (which is $7,000 for these specialty meds--this is in addition to our high deductible plan for doc visits-$10k).
I called our Infection Disease doc and left a message to ask how much Lovenox (the anti-coagulation drug) we would need to refil for as I knew there might be a chance we would be chosen for the 6 week duration. This, would be a randomized choice decided by the computer. It's a longer story to explain why but we are in this study as he has some rare things that have happened. I didn't want to pay for too much as each vile is about $1,000.
The night before we had stood in a circle and just given it to God (as the 6 week mark would be Tuesday...it's Monday now). We cried out and confirmed that we believed in Him.
O.k. so, I called Cigna insurance and the woman answered my questions. Indeed we start over, January 1st. We still had 1 small vile of Lovenox left, which would last us 2 days and then we would pay the $3,800 for the next 7 days of doses.
I sat on the couch physically feeling the weight of the financial strain. Ugh. I refused to succumb to the depression. I literally began to say outloud, "I give this to you Lord, you take this, you know our finances..." RING! RING!
"hello?!"
"Is this Mrs. Lisa Miller, the mother of Skye Miller?"
"yes"
"Mrs. Miller this is Jackie the research nurse and we wanted to call and let you know that the computer has randomized Skye for the treatment of Lovenox." (I thought this meant he needed to remain on it for 2 more months) "Mrs. Miller, I have some good news.....today will be your last 2 doses of Lovenox and then you will return to blah, blah, blah..."
"What did you say? Do I understand you correctly Jackie?"
THEN I CRIED AND CRIED and blubbered stuff about how God is so faithful and so good and we prayed and on and on...She listened and said I was cute.
"yes, you can finish tonight at 8:30 and we will call to set up the remaining follow up blood draws and check ups."
"THANK YOU JACKIE!"
So, we all gathered around (Alan in spirit as he was at work) and cried and danced (especially Chase Ray) and prayed and thanked God over and over.
Then we remembered we had purchased a gift card to Extraordinary Desserts and so immediately we decided to go and celebrate and EAT CAKE!
So, we are off all MEDICATION!! We just have 2x a week visits and some weeks once, for some scans and follow up blood draws. Can you believe it?!
Skye eating his apple cake!
Me drinking one of the best fresh chai teas I've had!
Chase chose Dulce de Leche ice cream
Because we no longer had the PICC in and didn't have any medicines, we went out in the rain and walked...you see, now we could get wet with no consequences!
Our Latin tutor helping us--maybe not a big deal to you, but to us it's pretty huge as it's been a struggle to just get normal life stuff accomplished!
and we took a walk up in the mountains!
Thank you God for changing seasons! We are ready for another chapter. Thank you for being interested and praying and supporting us. Mwuah!
No comments:
Post a Comment